Category Archives: HIV and AIDS

HAART for Children: the challenge Swaziland faces

Thabisile has to walk 3 miles along a rough track just to get to the bus stop to go to hospital for her AIDS treatment. Then, it costs 30 rand (around 2.60 euro) for a return trip, and she didn’t always have that money.

Thabisile has to walk 3 miles along a rough track just to get to the bus stop to go to hospital for her AIDS treatment. Then, it costs 30 rand (around 2.60 euro) for a return trip, and she didn’t always have that money. Credit: Caritas/Michelle Hough

By Michelle Hough, Communications Officer

Watch a film on the effects of AIDS in Swaziland and South Africa.

A group of 40 women and children are waiting for us as we arrive in the rural area of Velebantfu. They all have HIV, and so do many of the children.

I ask where all the men are. I’m told they are dead. Musa had told said that life expectancy in Swaziland was 37 years old. Many of the husbands and boyfriends who have died were in their 30s and 40s – an age when they could have actively contributed to the country’s workforce.

The women are now sick and frightened. They have little money and very little food or water. The local hospital provides antiretrovirals, but some women tell me they sometimes skip their monthly trip to the hospital because it is 45km away and they can’t always afford the bus fare. Some of the women I spoke to also have TB.
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HAART for Children: Arrival in Swaziland

Swaziland: Around 140,000 children our of a total population of 1.1 million are either infected with or affected by HIV.

Swaziland: Around 140,000 children out of a total population of 1.1 million are either infected with or affected by HIV. Credit: Caritas/Michelle Hough

By Michelle Hough, communications officer

Watch a film on the effects of AIDS in Swaziland and South Africa.

Abba was on the CD player, pizza was on the menu and there was a car park full of 4x4s outside. It could have been any American town on a quiet Sunday night. But it wasn’t, it was Manzini in Swaziland.

I’d known Swaziland wasn’t going to be quite what I’d expected after I’d seen billboards advertising Kentucky Fried Chicken along the motorway as Sr Aine Hughes, emergency officer from Caritas South Africa, drove me from Pretoria. The American dream was alive and well in a mountain kingdom in southern Africa.

“Our HIV infection rate currently stands at 42 percent,” said Musa Dlamini, Caritas Swaziland’s AIDS programme officer over dinner. “That’s the highest rate in the world.”

That was one reason why I’d come here – to gather communications materials for HAART for Children – Caritas Internationalis’ paediatric AIDS campaign. We wanted to show what happened to children in poor countries when they didn’t have access to timely HIV/TB diagnosis and to adequate treatment.
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Simply, Stopping Tuberculosis

3rd World Stop TB Partnership Forum 24th March – World TB Day By Rev. Msgr. Robert J. Vitillo Head of the Caritas Internationalis Delegation in Geneva and Chairperson, Catholic HIV and AIDS Network (CHAN) 450_stoptb1

When compared to the biennial International AIDS Conferences, the environment of this Forum lacked the “glitz”. The crowds were smaller, and the activists were less assertive. But the sense of urgency was just as immediate and the passion was just as evident among the 1,500 participants from more than 100 countries who assembled on 23 March for the opening of the Third Stop TB Partners Forum in Rio de Janeiro, Brazil.

The theme of the Forum is both straightforward and compelling: “Simply, Stopping Tuberculosis (TB)”. Not many years ago, the global human family seemed to be well on its way to accomplishing that goal by the year 2050 – as had been promised by the public health, clinical, and scientific experts.

In the opening ceremony of the Forum, we learned that the dream may not be realized – due to a number of developments, including the large number of HIV/TB co-infections as well as the development of new and much harder-to-treat “multidrug-resistant (MDR)” and “extensively drug resistant (XDR)” strains of the bacillus that causes TB. It was reported that some 9.7 million people were diagnosed with TB during 2007 and 1.77 million people died of the disease.
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I HAART children

by Francesca Merico, delegation of Caritas Internationalis for the United Nationas in Geneva

Read this story in French or Spanish

Poe was born with HIV. She is 18. When I met her in Thailand in 2006 she looked healthy and charming. Poe has benefited from effective antiretroviral therapy, for many years now.

When I met Mai, she was 5 years old, but she looked tiny and little; her skin was completely dry and peeling off all over her body. At the centre where she lived, the nurse was having hard time to find the right dosage for the mix of anti-retrovirals (ARVs) that Mai needed. The nurse had to cut several adult pills in parts, on a trial-and-error approach with the recurring consequence of under- or over-dosing.
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Caritas President on the role of the family

Interview With Cardinal Oscar Rodríguez Maradiaga
By Gilberto Hernández García

MEXICO CITY, FEB. 6, 2009 (Zenit.org).- With all of the importance that families have for individuals and society — including in the economic realm — the decision to form a family should be made with ample preparation, says the president of Caritas.

Cardinal Oscar Rodríguez Maradiaga affirmed this last month when he spoke with ZENIT at the 6th World Meeting of Families, held Jan. 14-18 in Mexico City.

In this interview, he considers the impact of poverty on family relationships and the Church’s response. Learn more…

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It is not enough just to talk about love

Twenty years of AIDS care by Caritas Romana
By Rev. Robert J. Vitillo
Caritas Internationalis’ Special Advisor on HIV and AIDS

I read with great surprise the news that Caritas Romana  is observing the twentieth anniversary of establishing its HIV and AIDS Services on 5th December. This is an occasion when the words, “It seemed like only yesterday …” at least for my memories of the work of Caritas Romana in this field.

In the late 1980s, I was working at the General Secretariat of Caritas Internationalis in Rome and, very early into my assignment, received the blessing of meeting Don Luigi Di Liegro, the Director of Caritas Romana. Before coming to Rome, I too had served as the Director of a diocesan Caritas organization in the United States, so I identified with the role and challenges faced by Don Luigi.

I quickly perceived, however, that this was no ordinary Caritas director. Every word that he spoke and every action that he took revealed the true meaning of the word “caritas” as it was exemplified by Jesus Himself.  Don Luigi was truly a man of “complete and unselfish love”. He treated every person he met, from the highest political or ecclesiastical leader to the homeless person on the street with respect for the God-given dignity they had received as children of God.

Thus it was no surprise that Don Luigi reacted swiftly and with determination to improve the plight of people living with AIDS in Rome  during the late 1980s. Many such persons were kept in hospital far beyond the necessary periods of time – mainly because they had no place to stay and no one to care for them.

Many had been abandoned by their families long before they knew that they had contracted this serious illness. Don Luigi decided that Caritas Romana should develop group home situations for such people – two homes for men and one home for mothers and children – all living with AIDS and with little hope of survival (since this occurred during a time when we had no knowledge that combination anti-retroviral treatment could prolong life expectancy and improve quality of life for persons living with HIV and AIDS).

Don Luigi was intensely focused on offering a welcoming, non-judgemental and compassionate environment to the residents of the Caritas Romana residences. He made that clear, in no uncertain terms, to those recruited to staff these residents. He greatly honoured me by requesting my assistance in planning the residences and in developing policies and procedures for their programmes.

Then came the difficult times. Local residents in the Villa Glori (Parioli) area of Rome were incensed that Don Luigi would bring people with AIDS to live in their upper-end area of the city. They protested and even introduced court action to block his plans. Don Luigi remained firm in his commitment to people living with the virus and presented a strong defence in court. Eventually, he, and those who would benefit from the Caritas Romana residences, won the case.

Once the houses opened, Don Luigi learned the painful stories of the residents and never seemed rushed or impatient as they recounted the many challenges encountered in their lives. Instead, he smiled broadly as they told him about the warmth and welcome they experienced in their new homes sponsored by Caritas Romana.

Perhaps most vividly I recall the day when the actress, Elizabeth Taylor visited the Villa Glori residence. She was accompanied by the fashion designer Valentino; he stayed only a few minutes, but she made it clear that she had come to visit and remained for almost two hours. As soon as Ms. Taylor started to speak English, Don Luigi realized that he had not provided for translation – he shouted across the room to me, “Bob, lo fai tu! (Bob, you do the translation!)”.

I am certain that the love and spirit of Don Luigi’s concern for people living with AIDS remains in the Caritas Romana residence. I know that his inspiration continues to strengthen my own commitment to advocate with and for those living with or affected by HIV.

I display prominently in my office a photo of Don Luigi and I can hear him say the words inscribed on this photo which, loosely translated into English, remind me: “It is not enough to talk about love; we must be willing, as Jesus did, to dirty our hands and put love (Caritas) into action with all whom we serve.”

Happy Anniversary to Caritas Romana and may Don Luigi continue to guide, from his new and heavenly home,  the active love that is promoted by Caritas all over the world!

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World AIDS Day – 1st December 2008

By Francesca Merico, CI International Delegate in Geneva

According to the United Nations Development Programme (UNDP), HIV has inflicted the “single greatest reversal in human development” in modern history. In 28 years, HIV and AIDS has become a global emergency, responsible for the deaths of some 25 million people. In sub-Saharan Africa, the region most affected by the epidemic, approximately 60 percent of adults living with HIV are women. 

The pandemic continues to cause untold physical, emotional, and spiritual pain, exacerbates human rights abuses, and disrupts family integrity and harmony. In the countries most heavily affected, HIV has reduced life expectancy by more than 20 years, causing dangerous consequences for the transfer of knowledge and values from one generation to the next. It has slowed economic growth, and deepened household poverty.

Today, despite the fact that 33 million people are living with HIV, many more do not know whether or not they have the virus and others do not know the difference between HIV infection and AIDS – the stage where a person’s immune system is seriously damaged and they may be unable to fend off serious infections, cancers, and other illnesses. Although special medicines to treat HIV have been developed, 70 percent of adults and 85 percent of children living with HIV lack access to much needed treatment.

Even though the transmission of HIV from an HIV-positive mother to her child can be avoided, 90 percent of the children living with HIV contracted the virus from their mothers.

World AIDS Day is an occasion to reflect on all these challenges as well as to reflect on the significance of HIV and AIDS for each and every one of us and especially for the Caritas Confederation which is called upon to serve the most vulnerable and marginalised members of our human community, including those living with or affected by HIV and AIDS.

For me, HIV and AIDS means the little hands and faces of the children I have met, hugged and spent time with. AIDS is their smiles, but also their suffering. It is the sadness and despair of the mothers queuing at the Lea Toto center in Kariobanghi or at the Korogocho clinic in Kenya hoping for some help for their babies; it is the distress of young men who have no more energy left to work and support their loved ones. It is all the grandmothers taking care of their grandchildren orphaned due to AIDS.

The theme for World AIDS Day this year is “leadership”. Leadership highlights the discrepancy between the commitments made to halt the spread of HIV and the actions taken to implement such promises.

This theme makes me think of the many people working for Caritas and other Catholic organisations, who are leading the AIDS response: Ann, Jane and Montserrat from CAFOD, Fr. Anthony and Fr. John from Caritas Vietnam, Klemens from MMI, Hernan, Rebecca and Juan Bosco in Mexico, Bob with CI, Nina at Misereor, Maria and Encarna in Kenya, Deirdre, Caroline and Finola at Trocaire, Ana Isabel from Caritas El Salvador, Vincent from Uganda, Rabia from CMMB, Burchard from Missio, Claudia from Kindermissionswerk, Fr. Michael Czerny from Africa Jesuit AIDS Network, Sr. Donata from the Health Commission of the Unions of Superiors General, and Greg from CRS.

Today, I am grateful to all of them for their engagement, commitment and passion for fighting HIV and AIDS.

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XVII International AIDS Conference

By Francesca Merico
International Delegate, Caritas Internationalis

Access to Medicines’ March, Mexico City, 2 August 2008

Access to Medicines’ March, Mexico City, 2 August 2008
Credit: Caritas

Walking around the Global Village, with its colorful booths, slogans, and presentations; passing from a session on the Joint Learning Initiative on children and AIDS to one on the Church response to AIDS; playing the Ecumenical Advocacy Alliance’s travel restrictions game at the Interfaith Exhibit, I felt the Conference’s hope as well as the challenges and struggles to bring together the many diverse faces of and responses to HIV and AIDS.

However, more than this array of groups and issues discussed, what nourished my enthusiasm were the many extraordinary individuals whom I met. They showed themselves as people whose passion, commitment and leadership is improving the living conditions of many people and children living with HIV.

At “AIDS 2008”, I was honored to meet and work with Mr. Juan Bosco Valle Delgado from the program “Esperanza de VIHda” of the Comision Episcopal para la Pastoral Social and Caritas Mexico; Ms. Beatriz Rebeca Jarero Ramirez from la Méson de la Misericordia Divina in Guadalajara (Mexico); Mr. Hernan Quezada, SJ, a dynamic Jesuit theology student and physician who is coordinating several initiatives on HIV and AIDS in Mexico and who founded a Guadalajara-based program called VIHas de Vida; Bishop Gustavo Rodriguez, President of the National Social Commission of the Catholic Church in Mexico; Bishop Gabriel Penate Rodriguez from la Comision de Salud de Guatemala; and “Laura” who spoke about her life as child born with HIV, who experienced discrimination and, for this reason, prefers to keep her real name secret, who lost her parents due to AIDS related-illnesses, and who found her new “home” and “family” at la Méson. Their contribution often goes unrecognized in international conferences, but they are putting their faith in action as a way to demonstrate their love to God in a tangible and concrete way, and they are making great progress in the response to AIDS.

I also was pleased to meet representatives from Caritas Latin America and the Caribbean. I became more familiar with their activities with and for people living with HIV, and the challenges they are facing in the region. We discussed together ways in which to strengthen the working relationships between Caritas workers on the national, diocesan, and local levels and those of us who try to represent, at the level of the United Nations and other global fora, the engagement and priorities of the global Caritas Confederation. We agreed on the need to share information and to integrate the needs experienced at grassroots level with the programs and guidelines elaborated by UN agencies.

The one-day conference, held on 30 July 2008, for some 35 Caritas delegates from Nicaragua, Guatemala, Mexico, Brazil, Honduras, Peru, El Salvador, and Panama, and the gathering of representatives of Catholic Organizations attending the International AIDS Conference, hosted, on 5 August 2008, by Caritas Internationalis, Caritas Mexico, CHAN (the Catholic HIV and AIDS Network) and the Jesuit Community in Mexico, as well as the meeting organized by CAFOD and Trocaire, on 3 August, offered productive moments to build knowledge and better coordination among Caritas and Catholic organizations as they strive to improve their response to HIV.

A great achievement of the networking among Catholic organizations that took place during the 2008 International Conference on AIDS was the proposal to establish a global Catholic AIDS Network to boost the Catholic Church’s profile in responding to the HIV pandemic, and to improve contact and information-sharing among Catholic organizations working on HIV and AIDS and with people living with HIV. Representatives of these same Catholic groups also expressed the need for further theological and pastoral reflection on AIDS.

Pediatric AIDS was another major focus of Caritas Internationalis’ advocacy activities undertaken during the Conference. Caritas Internationals has designed an advocacy campaign to raise awareness and to accelerate action on the lack of diagnostics and treatment adapted to children and babies living with HIV in low-income settings. This Children’s Advocacy Campaign on Pediatric AIDS will be launched in autumn by Caritas Internationalis in collaboration with the Ecumenical Advocacy Alliance, and it will actively involve children to write letter to governments, pharmaceutical companies and media.

The Conference provided an occasion to inform participants about the challenges in achieving access to child-friendly diagnostics and formulations to treat HIV and to encourage action in order to resolve such problems. During the Conference, Caritas Internationalis staff, together with other participant organizations of the Ecumenical Advocacy Alliance, met with officials of several pharmaceutical companies to discuss actions being planned or undertaken by such companies to develop pediatric diagnostic equipments as well as “child-friendly” formulations and fixed-dose-combinations of anti-retroviral medications (ARVs) adapted for use with children living with HIV.

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XVII International AIDS Conference in Mexico City

Entry 1
By: Michelle Hough
Caritas Communications Officer

Ricardo Neco, a Mexico City member of Hairdressers Against AIDS, styles the hair of Maria de Socorro Lopez in a booth at the XVII International AIDS Conference in Mexico City.

Credits:EcumenicalAdvocacyAlliance

Hot dogs, pizza, Chinese, European deli…

I’d just got off a nine-hour flight from Rome, and despite the vast selection of things to eat at JFK airport, the choice paralysed me. I couldn’t face any of it.

Three days later on the first day of the International AIDS conference in Mexico City, I had the same problem. The programme guide looked like a phone book and was over 400 pages long. With an estimated 25,000 people coming from across the world to discuss HIV and AIDS, I suppose they needed something to cater to everyone’s tastes. Although I couldn’t help wondering if all these events just ended up being too many.

I‘m at the conference as part of the media team for Ecumenical Advocacy Alliance (EEA) – a network of 90 faith-based organisations to which Caritas belongs – that narrows down the phone book of events to faith-based ones. A bit more manageable. I’m here to write stories for the EEA newsletter and website – without forgetting to do some for Caritas Internationalis (CI).

Before the AIDS conference started on 3rd August, faith-based groups gathered for a “pre-conference” entitled “Faith in Action. Now!” Basically, this helped them to get their plan of action together and share ideas and experiences before being sucked into the whirlpool of the main conference.

It is the first time that I’m dealing with AIDS issues in my job as communications officer for CI, but I’m with Monsignor Robert Vitillo, who is CI’s Special Advisor on HIV and AIDS. He has worked in the field of HIV and AIDS for over 20 years.

As I wandered around the “global forum” – a big tent full of stands representing hundreds of AIDS bodies – and looked at the multitude of AIDS organisations present such as “Hairdressers Against AIDS”, “Puppeteers without Borders” , “Sex Workers Outreach” and the Jerusalem AIDS Project, I realised that there was a place for everyone’s point of view in the AIDS debate.

Entry 2
By: Rev. Msgr. Robert J. Vitillo
Special Advisor on HIV and AIDS, Caritas Internationalis

The three-day Ecumenical pre-conference, convened in Mexico City, prior to the opening of the XVII International AIDS Conference attracted the participation of 480 people coming from 77 countries. The Catholic participation in this pre-conference was significantly greater that that in previous conferences, especially due to the fact that CAFOD and Trocaire (respectively, the Caritas organizations of England/Wales and of Ireland) invited many programme partners, including those coming from national and diocesan Caritas organizations, from Latin America, Africa, and Asia. CORDAID, the national Caritas organization from the Netherlands also invited several of its programme partners.

With the overall theme of “Faith in Action … Now”, the pre-conference emphasized the need to engage religious leaders in a more intensive response to the HIV pandemic. During the plenary sessions, as at previous pre-conferences, much emphasis was placed on the need to challenge stigma and discrimination among religious leaders and communities of faith. In this regard, Bishop Mark Hanson, President of the Lutheran World Federation, made a ritual act of seeking pardon for such discrimination caused by church leaders by washing the feet of two HIV-positive women. Many participants were deeply moved by this gesture; others were made uncomfortable by such an action and expressed the need to focus more on the positive work of the churches in response to AIDS rather than to launch into a constant litany of the negative actions on the part of some churches and religious leaders.

One new feature of this pre-conference was a focus, during one of the plenary sessions and in some workshops, on the situation of children living with and affected by HIV.

Entry 3
By: Michelle Hough
Caritas Communications Officer

In the 1980s, there was a doom-laden advert on British television warning that the number of people who had died from AIDS up until then was “just the tip of the iceberg”.

 

Reading some UNAIDS statistics while I was at the International AIDS Conference in Mexico City, I found out that an estimated 33 million people were living with AIDS in 2007, while 2 million people had died from AIDS-related illnesses.

 

So it had been the tip of the iceberg… however, I met people with HIV and AIDS – people from Mexico and the United States – at the conference and, with the help of good healthcare and a nutritious diet, their lives were manageable.

 

I visited the Global Village at the conference, where hundreds of stands promoted various organisations’ ideas and efforts to help people with HIV and AIDS, and I felt that there was almost a sense of celebration. AIDS was no longer an iceberg that was going to crash into us and sink us all, but was something that could be brought under control by various means.

 

Closing comments at the end of the International AIDS Conference confirmed this idea: AIDS was preventable, but if you got it, it was treatable.

 

Then I remember a photo someone once showed me of an African family, asking me if I noticed anything strange.

 

I did. There were children and there were grandparents, but there were no parents.

 

The UNAIDS Epidemic Update says that three-quarters of all AIDS-related deaths in 2007 occurred in sub-saharan Africa.

 

From what I’ve read, the reality of HIV and AIDS is very different for these people. Often, they don’t have access to healthcare and the right medicines; when they do, they might not have enough or the right foods to boost their nutrition levels so their bodies can absorb antiretroviral treatments.

 

Francesca Merico, a colleague from Caritas Internationalis’ (CI) Geneva office, told me that children in poor families around the world, often die unnecessarily because they don’t receive a quick enough diagnosis, or they don’t receive enough nutritious food – or their families don’t have a refrigerator to keep medicines cool. Sometimes these children die simply because they are given the wrong doses of adult medicines as child doses aren’t available to them.

 

An estimated 290,000 children under 15 died of AIDS-related illnesses in 2007.

 

While wealthy countries are managing to navigate their way around the iceberg, these children and a whole generation of parents in the developing world are taking its full force.

 

The Catholic Church – with its vast network of dedicated people on the ground – focuses a lot of its AIDS work on people like these.

 

Francesca told me that CI is launching a new campaign to ensure the quick diagnosis and adequate treatment of children with AIDS.

 

I heard other stories too, such as the one by the General Secretary of the YWCA, Nyaradzai Gumbonzvanda, who said when she was growing up in Zimbabwe and her family was affected by AIDS and illness, it was the Church that was there in the absence of any other help.

 

The conference is now over and people have gone home. The rallying cry at the conference, “Universal Action Now!”, urged the world to ensure prevention, care and treatment for everyone by 2010.

 

Looking at the UNAIDS figures, for many people in the developing world, who haven’t yet even gained access to clean water and regular, nutritious food, this goal still looks a long way off.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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